06 June, 2014
Patient-reported outcome measure for adult patients currently in development.
We have recently been successful in securing funding from the Neurofibromatosis Therapeutic Acceleration Program (NTAP) to develop a new patient-reported outcome measure intended for adult patients with plexiform neurofibroma. The new measure will assess quality of life based on the needs-model and will be developed simultaneously in the UK and US. We will be working alongside The University of Manchester and John Hopkins University to the develop the new instrument.
