Galen Research - the Science of Measurement
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    • Development of patient-reported outcome (PRO) measures
    • Generate disease-specific utilities
    • Development of clinician-reported outcome measures
    • Electronic Patient Reported Outcome Measure (ePRO) Services
    • Developing new language versions of patient-reported outcome measures
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    • Qualitative interviews, burden of illness studies, utility assessments
    • Fundamental measurement: The application of Rasch analysis
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News and updates

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  • 15 June, 2021

    Professor Steve McKenna Joins Advisory Board

    We are pleased to announce that our Professor Steve McKenna has joined the Patient Access & Affordability Project (PAAP) Advisory Board. – More...

  • 01 April, 2021

    Galen Welcomes New Staff Member

    A warm welcome to Galen's newest member – More...

  • Composite outcome measurement in clinical research: The triumph of illusion over reality?
    21 July, 2020

    Composite outcome measurement in clinical research: The triumph of illusion over reality?

    'Composite outcome measurement in clinical research: The triumph of illusion over reality?' has now been published. – More...

  • Research Article: The contribution of need fulfilment to quality of life
    21 July, 2020

    Research Article: The contribution of need fulfilment to quality of life

    'The contribution of need fulfilment to quality of life: A reflection on the relation between the needs-based model of quality of life and Max-Neef’s theory of Human Scale Development' has now been published. – More...

  • European e-Health Care Model for Rare Degenerative Diseases
    08 May, 2019

    European e-Health Care Model for Rare Degenerative Diseases

    Galen Research is working in collaboration with a multinational research team to develop a European e-Health care model. – More...

  • 06 March, 2019

    The Impact of Plexiform Neurofibromas on Need Fulfilment in Adults with Neurofibromatosis Type 1

    'A Qualitative Study of the Impact of Plexiform Neurofibromas on Need Fulfilment in Adults with Neurofibromatosis Type 1' has now been published. – More...

  • Measurement of Patient-Reported Outcomes. 2: Are Current Measures Failing Us?
    11 January, 2019

    Measurement of Patient-Reported Outcomes. 2: Are Current Measures Failing Us?

    'Measurement of Patient-Reported Outcomes. 2: Are Current Measures Failing Us?' has now been published. – More...

  • Measurement of Patient-Reported Outcomes. 1: The Search for the Holy Grail
    10 January, 2019

    Measurement of Patient-Reported Outcomes. 1: The Search for the Holy Grail

    'Measurement of Patient-Reported Outcomes. 1: The Search for the Holy Grail' has now been published – More...

  • An Organised, Scientific Approach to the Application of Patient-Reported Outcome Measures
    10 January, 2019

    An Organised, Scientific Approach to the Application of Patient-Reported Outcome Measures

    'It is Time for an Organised, Scientific Approach to the Application of Patient-Reported Outcome Measures in Clinical Studies and Trials' has now been published. – More...

  • Validation of the Alzheimer’s Patient Partners Life Impact Questionnaire (APPLIQue)
    August 2018

    Validation of the Alzheimer’s Patient Partners Life Impact Questionnaire (APPLIQue)

    'Measuring the Impact of Caring for a Spouse with Alzheimer’s Disease: Validation of the Alzheimer’s Patient Partners Life Impact Questionnaire (APPLIQue)' has now been published. – More...

  • June 2018

    Patient value: its nature, measurement, and role in real world evidence studies and outcomes-based

    The assessment of “patient value” is fundamental to clinical trials, real world evidence studies, and outcomes-based reimbursement schemes. Measures of health-related quality-of-life (HRQoL) are widely used in health research. – More...

  • What’s it like to live with Intestinal Failure?
    February 2018

    What’s it like to live with Intestinal Failure?

    Galen Research has published the article ‘The impact of Home Parenteral Nutrition on the lives of adults with Type 3 Intestinal Failure’ in Clinical Nutrition ESPEN. – More...

  • Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ)
    May 2017

    Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ)

    The article ‘Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ), a patient-centric outcome measure for Home Parenteral Nutrition’ has now been published in Clinical Nutrition. The abstract can be found below: – More...

  • September 2016

    The Limitations of Patient-Reported Outcome Measurement in Oncology

    Galen's Director of Research, Stephen McKenna, talks about the limitations of PRO measurement in Oncology in 'Journal of Clinical Pathways'. – More...

  • May 2016

    What’s it like to live with Crohn’s Disease?

    Galen Research has published an article describing what it is like to live with Crohn’s Disease (CD). http://fg.bmj.com/cgi/content/full/flgastro-2015-100678 – More...

  • April 2016

    Jeanette celebrates 10 years at Galen Research

    April welcomed our very own Jeanette Wilburn’s 10-year anniversary at Galen Research. To mark this special occasion, we sat down with Jeanette to ask about her time here at Galen Research and how the company has changed over the years. – More...

  • April 2016

    Publication of a new article regarding the CAMPHOR

    Health and Quality of Life Outcomes has published the article “Applying Rasch analysis to evaluate measurement equivalence of different administration formats of the Activity Limitation scale of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR)” (10.1186/s12955-016-0462-2). – More...

  • March 2016

    Galen Research relocates!

    This month saw the employees of Galen Research move into their new office workspace. – More...

  • February 2016

    Co-calibration of the ALIS, CAMPHOR and LCOPD

    The full article for “Co-calibrating quality-of-life scores from three pulmonary disorders: implications for comparative-effectiveness research” has now been published in the Journal of Medical Economics. – More...

  • January 2016

    Greek adaptation and validation of the ASQoL

    "Greek adaptation and validation of the Ankylosing Spondylitis Quality of Life (ASQoL) measure" has been published in the Greek medical journal Hippokratia. – More...

  • December 2015

    Favourable feedback from the European Medicines Agency

    Galen received a positive evaluation from the European Medicines Agency (EMA) on the methodology they are using to develop a new outcome measure for patients with neurofibromatosis type 1 with associated plexiforms. – More...

  • December 2015

    Portuguese adaptation of rheumatology measures

    Professor Stephen McKenna, Jessica Stepanous and Alice Heaney travelled to Portugal this month to adapt three of Galen’s rheumatology outcome measures. – More...

  • Publication of a new article regarding the CLIQ
    September 2015

    Publication of a new article regarding the CLIQ

    Quality of Life Research journal has published the article “Assessing quality of life in Crohn’s disease: development and validation of the Crohn’s Life Impact Questionnaire (CLIQ)” (DOI:10.1007/s11136-015-0947-1). – More...

  • April-September 2015

    New languages of our Psoriatic Arthritis Quality of Life (PsAQoL) measure

    We have recently adapted the PsAQoL into 18 new language versions. – More...

  • New members of staff
    August 2015

    New members of staff

    This year welcomed two new Research Assistants to the Galen team. – More...

  • Co-calibration of the PSORIQoL and QoLIAD
    January 2015

    Co-calibration of the PSORIQoL and QoLIAD

    The full article for “Comparing the impact of psoriasis and atopic dermatitis on quality of life: co-calibration of the PSORIQoL and QoLIAD” (DOI:10.1007/s11136-014-0630-y) has now been published in Quality of Life Research. – More...

  • Assessing quality of life in adult growth hormone deficiency: Further development of the QoL-AGHDA
    11 November, 2014

    Assessing quality of life in adult growth hormone deficiency: Further development of the QoL-AGHDA

    This poster outlines the further development of the Quality of Life Assessment of Growth Hormone Deficiency in Adults (QoL-AGHDA), which is a patient reported outcome measure. This includes the adaptation of the QoL-AGHDA for other languages. – More...

  • Publication of a new article regarding the RAQoL.
    06 October, 2014

    Publication of a new article regarding the RAQoL.

    A new article entitled "Further international adaptation and validation of the Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire" (DOI: 10.1007/s00296-014-3138-4) has been published in Rheumatology International – More...

  • Rasch analysis of the Dermatology Life Quality Questionnaire (DLQI)
    05 September, 2014

    Rasch analysis of the Dermatology Life Quality Questionnaire (DLQI)

    The purpose of this presentation is to discuss good scale development methodology in the context of Rasch analysis. – More...

  • Crohn’s Life Impact Questionnaire (CLIQ) presentation now available
    02 September, 2014

    Crohn’s Life Impact Questionnaire (CLIQ) presentation now available

    A presentation regarding the development of the Crohn's Life Impact Questionnaire (CLIQ) is now available to view. – More...

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