Galen Research - the Science of Measurement
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    • Development of patient-reported outcome (PRO) measures
    • Generate disease-specific utilities
    • Development of clinician-reported outcome measures
    • Electronic Patient Reported Outcome Measure (ePRO) Services
    • Developing new language versions of patient-reported outcome measures
    • Write academic manuscripts
    • Qualitative interviews, burden of illness studies, utility assessments
    • Fundamental measurement: The application of Rasch analysis
    • PRO mapping
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    • Provide advisory service for clinical trials
    • Analyse and interpret clinical trial data
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News and updates

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  • 10 November, 2025

    ISPOR Europe 2025

    Galen Research are attending ISPOR Europe 2025 in Glasgow! – More...

  • 12 October, 2025

    Jeanette goes to Nashville

    Jeanette attends the HD Clinical Research Congress in Nashville – More...

  • 11 July, 2025

    Galen Summer Team Outing

    Yesterday was a little different for the Galen team as we swapped our desks for the beautiful scenery of Trentham Gardens. – More...

  • 23 June, 2025

    Galen is Proud to Support Research by Brigham and Women’s Hospital

    With June being National Migraine and Headache Awareness Month, we have decided to shine the spotlight on some exciting research from Brigham and Women's Hospital. – More...

  • 19 June, 2025

    Galen Attends Birmingham PROMs Conference

    Our Research Assistants Ellie Johnstone & Andrew MacLennan are excited to be presenting at the 9th National Patient-Reported Outcome Measures (PROMs) Research Conference. – More...

  • 30 May, 2025

    Huntington’s Disease Awareness Month

    As May, Huntington’s Disease awareness month, is coming to an end. We want to round up the month with an update of what we have been doing in this area. – More...

  • 11 April, 2025

    Progress in our Huntington’s Disease Quality of Life measures

    After a rigorous process the first draft of the HD-mQoL along with the proxy is now complete. – More...

  • 08 March, 2025

    Happy International Women’s Day!

    – More...

  • 13 February, 2025

    Happy Galen-tines Day!

    When you have a day named after you, it would be rude not to celebrate <3 – More...

  • 21 January, 2025

    New Collaboration

    Galen is pleased to announce a new collaboration with the Karolinska Institute in Sweden. – More...

  • 12 December, 2024

    Merry Christmas from Galen!

    Wishing everyone a Merry Christmas and a Happy and Healthy New Year from us all at Galen! – More...

  • 03 December, 2024

    Galen Attends the UK Stroke Forum in Liverpool

    – More...

  • 19 November, 2024

    Galen Attends ISPOR Barcelona 2024

    Jeanette and Mariusz will be presenting their poster at ISPOR – More...

  • 24 September, 2024

    Exhancing QoL in Axial Spondyloarthritis

    – More...

  • 19 September, 2024

    Galen Welcomes Three New Members!

    A huge welcome to Andrew, Beth and Darcey! – More...

  • 29 September, 2023

    Galen Welcomes New Staff Members

    Galen welcomes Isobel and Ellie to the team! – More...

  • 17 October, 2022

    Galen Welcomes Samantha-Jo

    Welcome to the team Sammy! – More...

  • 01 April, 2021

    Galen Welcomes New Staff Member

    A warm welcome to Galen's newest member – More...

  • Composite outcome measurement in clinical research: The triumph of illusion over reality?
    21 July, 2020

    Composite outcome measurement in clinical research: The triumph of illusion over reality?

    'Composite outcome measurement in clinical research: The triumph of illusion over reality?' has now been published. – More...

  • Research Article: The contribution of need fulfilment to quality of life
    21 July, 2020

    Research Article: The contribution of need fulfilment to quality of life

    'The contribution of need fulfilment to quality of life: A reflection on the relation between the needs-based model of quality of life and Max-Neef’s theory of Human Scale Development' has now been published. – More...

  • European e-Health Care Model for Rare Degenerative Diseases
    08 May, 2019

    European e-Health Care Model for Rare Degenerative Diseases

    Galen Research is working in collaboration with a multinational research team to develop a European e-Health care model. – More...

  • 06 March, 2019

    The Impact of Plexiform Neurofibromas on Need Fulfilment in Adults with Neurofibromatosis Type 1

    'A Qualitative Study of the Impact of Plexiform Neurofibromas on Need Fulfilment in Adults with Neurofibromatosis Type 1' has now been published. – More...

  • Measurement of Patient-Reported Outcomes. 2: Are Current Measures Failing Us?
    11 January, 2019

    Measurement of Patient-Reported Outcomes. 2: Are Current Measures Failing Us?

    'Measurement of Patient-Reported Outcomes. 2: Are Current Measures Failing Us?' has now been published. – More...

  • Measurement of Patient-Reported Outcomes. 1: The Search for the Holy Grail
    10 January, 2019

    Measurement of Patient-Reported Outcomes. 1: The Search for the Holy Grail

    'Measurement of Patient-Reported Outcomes. 1: The Search for the Holy Grail' has now been published – More...

  • An Organised, Scientific Approach to the Application of Patient-Reported Outcome Measures
    10 January, 2019

    An Organised, Scientific Approach to the Application of Patient-Reported Outcome Measures

    'It is Time for an Organised, Scientific Approach to the Application of Patient-Reported Outcome Measures in Clinical Studies and Trials' has now been published. – More...

  • Validation of the Alzheimer’s Patient Partners Life Impact Questionnaire (APPLIQue)
    August 2018

    Validation of the Alzheimer’s Patient Partners Life Impact Questionnaire (APPLIQue)

    'Measuring the Impact of Caring for a Spouse with Alzheimer’s Disease: Validation of the Alzheimer’s Patient Partners Life Impact Questionnaire (APPLIQue)' has now been published. – More...

  • June 2018

    Patient value: its nature, measurement, and role in real world evidence studies and outcomes-based

    The assessment of “patient value” is fundamental to clinical trials, real world evidence studies, and outcomes-based reimbursement schemes. Measures of health-related quality-of-life (HRQoL) are widely used in health research. – More...

  • What’s it like to live with Intestinal Failure?
    February 2018

    What’s it like to live with Intestinal Failure?

    Galen Research has published the article ‘The impact of Home Parenteral Nutrition on the lives of adults with Type 3 Intestinal Failure’ in Clinical Nutrition ESPEN. – More...

  • Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ)
    May 2017

    Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ)

    The article ‘Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ), a patient-centric outcome measure for Home Parenteral Nutrition’ has now been published in Clinical Nutrition. The abstract can be found below: – More...

  • September 2016

    The Limitations of Patient-Reported Outcome Measurement in Oncology

    Galen's Director of Research, Stephen McKenna, talks about the limitations of PRO measurement in Oncology in 'Journal of Clinical Pathways'. – More...

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